TB meds! Neurologist number five!

November 17, 2011 at 11:57 pm (Medical, Tuberculosis (Inactive)) (, , , , )

A quick update on the medical front:

I saw the (somewhat saner) infectious disease doctor, and I start my TB treatments after I get back from Brimstone. I’m grateful that I can finally start, but I’m also hesitant because these drugs have a reputation of tearing you apart. I have to get regular liver tests, and stay away from things that tax my liver; I’ve also heard they wreak havoc on your G.I. systems. On top of that, they will make my pain drugs work less, if at all. So though I’m happy that I will be TB free in a few months, those few months scare the crap out of me. The good news is but I will see my pain management doctor after I’ve been on the TB meds for a couple of weeks; hopefully, he’ll have some ideas as to better manage my pain once we know exactly how ineffective the narcotics will be. There is a little fear that I will suffer a similar reaction as I did in June (I was hospitalized due to an interaction between fentanyl transdermal patch and the TB meds that caused me to go into immediate withdrawal even though I was wearing a brand-new patch); the ID doc said that  if there is any wackiness I should go to the ER. Let’s hope that’s not what happens.

I also got a surprise phone call from the new neurologist today. I was supposed to see them in mid-December; and was angsting because I have pretty severe nerve pain and December was a long way away. it seems they had a cancellation for Friday (tomorrow as of this writing) which makes me a very happy Del. it also means that there’s a good chance I will get a script for an MRI — those of you who know, know that I have been looking for an MRI to accommodate me for almost a year now; Johns Hopkins just got two new machines that sound like they may fit the bill. If that works out, I may be able to get my pain management doctor to play nice with the neurologist and see if we can’t come up with a better solution for my neuralgia.

so wish me luck tomorrow with neurologist number five. I’ve worked with him before; he is also a sleep study specialist and was the one that prescribed my CPAP. I really enjoyed his candor; Ninja has been seeing him for neurological stuff and really likes him. His office is about 25 minutes away from my house; not quite as bad as going to Johns Hopkins but not as convenient as neurologist number three (who blamed everything on my opiates).

 

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5 Comments

  1. Debbie said,

    Luck go with you!

  2. Fala said,

    All the best! I’ll cross fingers and toes and heart and nose if you like. 🙂

  3. Eric S said,

    Luck and success to you.

  4. DaveC said,

    Little known fake fact: Kevin Spacey’s first walk-on role in a major motion picture was as Neurologist #5 in the often overlooked film There’s Something About My Liver. Details available on Wikipedia as soon as I get over there.
    Also, good luck.

  5. Sarah C said,

    I had to do a course of INH? in my early twenties, because I developed antibodies to TB. Never developed lung leisons.

    It sucks. Hate the stuff. I’m sad to hear you have to go through this — however it does pass.

    While I was on the stuff, I was warned that even one drink could be seriously damaging/horrible for my liver, like in the cirrosis category — I’ve never thought of you as a real drinker, and I’m sure you’ve heard this, but I thought I’d mention it.

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